I am not an immediate family member, can I complete the form?
We have asked for only immediate family members to complete the form so we can be sure the family want the name of the person who has died to be part of this campaign. If for any reason the immediate family are unable to complete the form, but they would support you completing the form on their behalf, please contact CRY.
What does CRY want to achieve by this campaign?
The Government have said they will review the UK National Screening Committee (UK NSC) recommendation not to implement a national screening programme if new evidence is put forward. So if we can prove the UK NSC have drastically underestimated the incidence of young sudden cardiac death, the Government will have the opportunity to review its policy on screening.
Is there a specific age range for being part of this campaign?
Normally we concentrate on the 14-35 year old age range but in this instance we also want to hear from anyone who has suffered the loss of a child under 14 years of age due to a cardiac condition and, at the other end of the scale, we want to hear of anyone aged 50 or under who has died from a cardiac condition. This will enable comparisons with other studies which use different age ranges. It will also enable comparisons with other causes of death and the different ways studies report incidence rates.
Why are the UK Government figures wrong?
The Government’s advisors ignored or refused to consider key research papers and reports from CRY. This is shocking. 80% of coroners in the UK refer cases to CRY’s specialist cardiac pathology services after a suspicious young sudden death. CRY supported nearly half of the bereaved families affected by a young sudden cardiac death in the UK in 2014. CRY operates the largest national cardiac screening programme for young people of its kind. Since 1995 it has screened more than 80,000 young people and it now screens more than 20,000 young people a year. CRY is a respected international leader in research into young sudden cardiac death and inherited cardiac conditions.