Thank you for adding another voice to this campaign.
We already know that there are 12 deaths a week, why do you need to do this campaign?
UK policy advisors only considered UK data from a national audit which suggested there is less than 1 death a week in the UK. They ignored CRY data and research which shows a much higher figure. This is an incredible insult to affected families; nearly half of the 600 families who experienced a young sudden cardiac death in 2014 (over 250 families) were supported by CRY. However, we believe if the government and policy advisors are confronted with the names of the young people who have died, not just a number, then they can no longer disregard our evidence.
Isn’t young sudden cardiac death rare? Aren’t you just as likely to be killed by lightning?
Young sudden cardiac death is rare compared to cardiac deaths in the elderly and middle-aged, but it is not rare compared to the other most common causes of death in young people (e.g. road traffic accidents, suicides, accidental poisonings, etc – http://www.ons.gov.uk/ons/rel/subnational-health1/leading-causes-of-death/2009/index.html). Many medical professionals and policy advisors still incorrectly think a young sudden cardiac death is as rare as being killed by lightning – which is simply wrong. This thinking is outdated, dangerous if applied to medical decision making and should have no place in modern scientific reports or policy recommendations.
What does CRY want to achieve by this campaign?
The Government have said they will review the UK National Screening Committee (UK NSC) recommendation not to implement a national screening programme if new evidence is put forward. So if we can prove the UK NSC have drastically underestimated the incidence of young sudden cardiac death, the Government will have the opportunity to review its policy on screening.
I am not an immediate family member, can I complete the form?
We have asked for only immediate family members to complete the form so we can be sure the family want the name of the person who has died to be part of this campaign. If for any reason the immediate family are unable to complete the form, but they would support you completing the form on their behalf, please contact CRY.